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ELECTRONIC SARCOMA UPDATE NEWSLETTER
April 2010

Volume 7, Number 2

Feature Articles

What is sarcoma? Qu’est-ce que le sarcome? Co to jest miesak? ¿Qué es un sarcoma?

Editorial by Bruce Shriver, PhD

Letters to the Editor

Dr. Subramanian shares information about a new Sarcoma MicroRNA Expression Database (S-MED). Dr. Asgharzadeh invites patients and their families to participate in a Ewing's Sarcoma Genetics Study. And Dr. Spector invites patients and their families to participate in the GO (Genetics of Osteosarcoma) Study.

Advocating for Children with Sarcoma

Op Ed: Mary Sorens discusses funding for childhood cancers and concludes that advocating for sarcoma-specific research and services is crucial in supporting pediatric sarcoma patients and their families.

Targeting the PI3K/AKT Pathway in UPS/MFH : Aiming Towards Novel Therapy

Dr. Zhu and Dr. Lev discuss the potential efficacy of AKT as an anti-UPS/MFH therapeutic target.

Telomere Maintenance Mechanisms in Liposarcomas: A Progress Report and Future Directions

Dr. Dominique Broccoli discusses evidence that indicates fundamental differences in tumors that use ALT versus telomerase for telomere maintenance.

Translated Articles

Liposarcomes

Dr. Simon Baconnier and Elodie Espesset provide a French translation of the ESUN review article about liposarcoma.

Dermatofibrosarcoma Protuberans (Włókniakomięsak guzowaty skóry)

Dr. Piotr Rutkowski and Kamil Dolecki provide a Polish translation of the ESUN review article about dermatofibrosarcoma protuberans.

Leiomiosarcoma óseo y de partes blandas: una panorámica

Dr. Ricardo Cubedo and Elena Pagola provide a Spanish translation of the ESUN review article about leiomyosarcoma of the bone and soft tissues.

Announcements

$50,000 Research Grant Awarded

The Liddy Shriver Sarcoma Initiative awards a $50,000 grant for UPS/MFH research at the University of Texas
M. D. Anderson Cancer Center.

Six Internationally Distinguished Physicians Join ESUN's Medical Editorial Advisory Board

We are pleased to announce that distinguished physicians from the Australia, Canada, Italy, Poland, the United Kingdom and the United States have joined our Medical Editorial Advisory Board.

Regular Columns

Clinical Trials News

Abstracts and information about sarcoma-related clinical trials, including links to recently opened clinical trials.

Research Corner

Abstracts of research articles that may be of interest to the sarcoma community.

Sarcoma Community Updates

Abstracts, stories and letters about sarcoma support and advocacy.

Stories of Courage and Hope

Abstracts of inspiring stories about sarcoma patients, survivors, caregivers and those who have lost a loved one to sarcoma.

The Sarcoma Calendar

Calendar of events and meetings of interest to sarcoma patients, caregivers, advocates, physicians and nurses.

Copyright © 2010 Liddy Shriver Sarcoma Initiative.


The Electronic Sarcoma Update Newsletter is an online peer-reviewed newsletter that contains articles of interest to patients, caregivers, physicians, and nurses. ESUN is published bi-monthly and has regular columns discussing:

  • Specific sarcomas
  • Current issues in sarcoma treatment
  • Participatory medicine
  • Recent research findings
  • Answers to readers' questions
  • Stories of courage and hope av

ESUN has an outstanding Medical Editorial Board and is a vital source of information for thousands of readers worldwide. There is a Printable Handout About ESUN available for distribution.

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Information for Authors

We welcome contributions of essays and articles that are relevant to ESUN and its intended audience. 
If you would like to write an article for ESUN, please contact us and we will send you our Guidelines for Authors.

Contact Information

ESUN
17 Bethea Drive
Ossining, New York 10562-1620
Phone: (914) 762-3251
Fax: (914) 941-9181
E-mail: esun@sarcomahelp.org

Disclaimer

Information on the The Initiative's website and in the Electronic Sarcoma Update Newsletter (ESUN) is provided on an "as is" basis for general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs. We caution readers and internet users to take care when using "medical advice" obtained on the web or in newsletters such as this. If you are concerned about your medical condition or that of a family member, loved one, or friend, we strongly recommend that you consult a physician. Although we carefully review our content, The Initiative cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of the various websites that we link to or that are linked to The Initiative's website. We believe the information on our website and in ESUN provides you with a starting point for a discussion with your physician who can give you his/her opinion about it.

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Articles from the Electronic Sarcoma Update Newsletter are peer-reviewed, professional content that is fully copyrighted. You cannot publish or redistribute these articles for commercial purposes without written permission from us. You can publish or redistribute these articles for non-commercial purposes without written permission, as long as the content is attributed to the Liddy Shriver Sarcoma Initiative. For more information, see the complete Terms of Use of this website.

Medical Editorial and Advisory Board

Laurence Baker, DO, Southwest Oncology Group and SARC
Jean-Yves Blay, MD, PhD, Université Claude Bernard in Lyon, France
Murray Brennan, MD, Memorial Sloan-Kettering Cancer Center
Frederick (Fritz) Eilber, MD, UCLA Medical Center
Mark Gebhardt, MD, Harvard University, Beth Israel Deaconess Medical Center
Richard Gorlick, MD, The Children's Hospital at Montefiore
Alessandro Gronchi, MD, Istituto Nazionale Tumori in Milan, Italy
Mary Louise Keohan, MD, Memorial Sloan-Kettering Cancer Center
Crystal Mackall, MD, National Cancer Institute
David Malkin, MD, The Hospital for Sick Children in Toronto, Canada
Ole Steen Nielsen, MD, University of Aarhus in Aarhus, Denmark
Raphael Pollock, MD, PhD, University of Texas M. D. Anderson Cancer Center
R. Lor Randall, MD, University of Utah, Huntsman Cancer Institute
Piotr Rutkowski, MD, PhD, Sklodowska-Curie Memorial Cancer Center in Warsaw, Poland
Peter Schlag, MD, PhD, Charité University Hospital in Berlin, Germany
David Thomas, MD, Peter MacCallum Cancer Centre in East Melbourne, Australia
Margaret von Mehren, MD, Fox Chase Cancer Center
Leonard Wexler, MD, Memorial Sloan-Kettering Cancer Center
Jeremy Whelan, MD, University College Hospital in London, United Kingdom

Sarcoma Advocacy Advisory Committee

Elizabeth Goldstein-Rice
MiMi Olsson
Christian "Bob" Pfeiffer

Editor-in-Chief

Bruce Shriver, PhD

Associate Editor

Mary Sorens

Editorial Staff

Odds and Ends: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Stories of Courage and Hope: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Research Corner: Bruce Shriver, PhD and Tom Swartz

Contributing Editors

Coordinating Editor, CTOS Op Ed: G. Douglas Letson, MD, Moffitt Cancer Center

Copy Editors

Beverly Shriver, RN
Tom Swartz