• In This Issue
  • About ESUN
  • Board and Staff
  • All Issues
  • Add to Favorites

ELECTRONIC SARCOMA UPDATE NEWSLETTER
DECEMBER 2008

Volume 5, Number 6

Feature Articles

Five Years of Service to the Sarcoma Community and a New Beginning

Editorial by Bruce Shriver, PhD

FDA Approval for Pediatric Orthopedic Implants

CTOS Op Ed: Drs. Letson and Wilson discuss recent trends in the FDA approval process for low-volume prostheses.

Letters to the Editor

Dr. Steven Rosenberg, Chief of Surgery at the National Cancer Institute, calls for synovial cell sarcoma participants.
Frank Burroughs, President of the Abigail Alliance
, writes about the progress and state of the Abigail Alliance.

Development of New Drugs: Lessons from Clinical Trials

Dr. Paul Meyers presents his thoughts about some of the issues that arise as we consider how to move biological agents forward into our armamentarium of treatment for sarcomas.

The Importance of Second Opinions for Sarcoma

Elizabeth Goldstein-Rice reviews the role and necessity of expert second opinions in sarcoma diagnosis and treatment.

The Importance of Treatment at a Specialty Center for Sarcomas

Elizabeth Goldstein-Rice explains the role of sarcoma centers and specialists in the treatment of sarcoma.

Guidelines for Parents of a Child with Sarcoma

Dr. Paul Meyers offers advice for parents of children with sarcoma.

Dealing with the Side Effects of Sarcoma Treatments

Mimi Olsson and Mary Sorens provide information and helpful hints about managing the side effects of treatment.

Improving the Patient Experience: the UK Takes Specialist Centres Seriously

Roger Wilson describes why and how the shape of the service which delivers sarcoma treatment in the UK is rapidly changing.

Complex Issues of Communication in the Context of Cancer Care

From a Nurses Perspective: Marianne Griffin, RN, BA discusses why sensitive communication and support must be tailored to each individual's needs.

An Update on the QuadW Foundation

The QuadW Board of Directors describes the mission and recent accomplishments of their foundation.

The New Look of SarcomaHelp.org

Mary Sorens and Bruce Shriver, PhD discuss some of the features of the Liddy Shriver Sarcoma Initiative's new website.

Regular Columns

Clinical Trials News

Clinical trials that have been added to our searchable listings.

Research Corner

Abstracts of recent sarcoma-related research articles.

Stories of Courage and Hope

Abstracts of inspiring stories we have recently encountered about sarcoma patients, survivors, caregivers and those who have lost a loved one to sarcoma.

Odds and Ends

Pointers to resources and abstracts of interesting articles.

The Sarcoma Calendar

Calendar of events and meetings of interest to sarcoma patients, caregivers, advocates, physicians and nurses.

Copyright © 2008 Liddy Shriver Sarcoma Initiative.


The Electronic Sarcoma Update Newsletter is an online peer-reviewed newsletter that contains articles of interest to patients, caregivers, physicians, and nurses. ESUN is published bi-monthly and has regular columns discussing:

  • Specific sarcomas
  • Current issues in sarcoma treatment
  • Participatory medicine
  • Recent research findings
  • Answers to readers' questions
  • Stories of courage and hope

ESUN has an outstanding Medical Editorial Board and is a vital source of information for thousands of readers worldwide.

Free Subscriptions

To be notified by e-mail when a new issue of ESUN has been published, please send us a message that includes your name and e-mail address.

Topics and Feedback

Please send us your recommendations for topics to be covered in ESUN, as well as any other comments or feedback that can be useful to us.

Information for Authors

We welcome contributions of essays and articles that are relevant to ESUN and its intended audience. 
If you would like to write an article for ESUN, please contact us and we will send you our Guidelines for Authors.

Contact Information

ESUN
17 Bethea Drive
Ossining, New York 10562-1620
Phone: (914) 762-3251
Fax: (914) 941-9181
E-mail: esun@sarcomahelp.org

Disclaimer

Information on the The Initiative's website and in the Electronic Sarcoma Update Newsletter (ESUN) is provided on an "as is" basis for general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs. We caution readers and internet users to take care when using "medical advice" obtained on the web or in newsletters such as this. If you are concerned about your medical condition or that of a family member, loved one, or friend, we strongly recommend that you consult a physician. Although we carefully review our content, The Initiative cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of the various websites that we link to or that are linked to The Initiative's website. We believe the information on our website and in ESUN provides you with a starting point for a discussion with your physician who can give you his/her opinion about it.

Copyright

Articles from the Electronic Sarcoma Update Newsletter are peer-reviewed, professional content that is fully copyrighted. You cannot publish or redistribute these articles for commercial purposes without written permission from us. You can publish or redistribute these articles for non-commercial purposes without written permission, as long as the content is attributed to the Liddy Shriver Sarcoma Initiative. For more information, see the complete Terms of Use of this website.

Medical Editorial and Advisory Board

Karen Albritton, MD, Dana-Farber Cancer Institute
Laurence Baker, DO, Southwest Oncology Group and SARC
Jean-Yves Blay, MD, PhD, Université Claude Bernard in Lyon, France
Murray Brennan, MD, Memorial Sloan-Kettering Cancer Center
Mark Gebhardt, MD, Harvard University, Beth Israel Deaconess Medical Center
Richard Gorlick, MD, The Children's Hospital at Montefiore
Mary Louise Keohan, MD, Memorial Sloan-Kettering Cancer Center
Crystal Mackall, MD, National Cancer Institute
Ole Steen Nielsen, MD, University of Aarhus in Aarhus, Denmark
Raphael Pollock, MD, PhD, University of Texas M. D. Anderson Cancer Center
R. Lor Randall, MD, University of Utah, Huntsman Cancer Institute
Luca Sangiorgi, MD, PhD, Rizzoli Orthopaedic Institute (IOR), Italy
Leonard Wexler, MD, Memorial Sloan-Kettering Cancer Center

Sarcoma Advocacy Advisory Committee

Elizabeth Goldstein-Rice
MiMi Olsson
Christian "Bob" Pfeiffer
Mary Sorens

Editor-in-Chief

Bruce Shriver, PhD

Associate Editor

Mary Sorens

Editorial Staff

Clinical Trials: Mary Sorens
Odds and Ends: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Stories of Courage and Hope: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Research Corner: Bruce Shriver, PhD and Tom Swartz

Contributing Editors

Coordinating Editor, CTOS Op Ed: G. Douglas Letson, MD, Moffitt Cancer Center

Copy Editors

Beverly Shriver, RN
Tom Swartz