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ELECTRONIC SARCOMA UPDATE NEWSLETTER
DECEMBER 2009

Volume 6, Number 6

Feature Articles

Funding Sarcoma Research: a Call for Grant Application Submissions

Editorial by Bruce Shriver, PhD

Clinical and Molecular Prognostic Factors in Osteosarcoma

CTOS Op Ed: Drs. Marulanda and Letson give a number of reasons why they believe that identifying valid prognostic factors in osteosarcoma is of paramount importance.

Epithelioid Sarcoma

Drs. Hosseinzadeh and Cheung review the epidemiology, clinical and pathological features, diagnosis, treatment and prognostic factors in patients with epithelioid sarcoma.

Current Topics in Sarcoma

Elizabeth Goldstein-Rice discusses the results of several recent sarcoma studies.

Graphically Navigating SarcomaHelp.org

Bruce Shriver describes an experimental graphical interface that allows users to navigate around the wealth of information found on SarcomaHelp.org.

The CureTheProcess Campaign

A description of the CureTheProcess Campaign which is focused on bringing about science-driven public policy that will increase the predictability of the regulatory process for rare disease treatments.

Regular Columns

Clinical Trials News

Sarcoma clinical trials that have been added to our searchable listings.

Research Corner

Abstracts of research articles that may be of interest to the sarcoma community.

Stories of Courage and Hope

Abstracts of inspiring stories about sarcoma patients, survivors, caregivers and those who have lost a loved one to sarcoma.

Sarcoma Community Updates

Abstracts, stories and letters about sarcoma support and advocacy.

The Sarcoma Calendar

Calendar of events and meetings of interest to sarcoma patients, caregivers, advocates, physicians and nurses.

Copyright © 2009 Liddy Shriver Sarcoma Initiative.


The Electronic Sarcoma Update Newsletter is an online peer-reviewed newsletter that contains articles of interest to patients, caregivers, physicians, and nurses. ESUN is published bi-monthly and has regular columns discussing:

  • Specific sarcomas
  • Current issues in sarcoma treatment
  • Participatory medicine
  • Recent research findings
  • Answers to readers' questions
  • Stories of courage and hope

ESUN has an outstanding Medical Editorial Board and is a vital source of information for thousands of readers worldwide.

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Information for Authors

We welcome contributions of essays and articles that are relevant to ESUN and its intended audience. 
If you would like to write an article for ESUN, please contact us and we will send you our Guidelines for Authors.

Contact Information

ESUN
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Phone: (914) 762-3251
Fax: (914) 941-9181
E-mail: esun@sarcomahelp.org

Disclaimer

Information on the The Initiative's website and in the Electronic Sarcoma Update Newsletter (ESUN) is provided on an "as is" basis for general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs. We caution readers and internet users to take care when using "medical advice" obtained on the web or in newsletters such as this. If you are concerned about your medical condition or that of a family member, loved one, or friend, we strongly recommend that you consult a physician. Although we carefully review our content, The Initiative cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of the various websites that we link to or that are linked to The Initiative's website. We believe the information on our website and in ESUN provides you with a starting point for a discussion with your physician who can give you his/her opinion about it.

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Articles from the Electronic Sarcoma Update Newsletter are peer-reviewed, professional content that is fully copyrighted. You cannot publish or redistribute these articles for commercial purposes without written permission from us. You can publish or redistribute these articles for non-commercial purposes without written permission, as long as the content is attributed to the Liddy Shriver Sarcoma Initiative. For more information, see the complete Terms of Use of this website.

Medical Editorial and Advisory Board

Karen Albritton, MD, Dana-Farber Cancer Institute
Laurence Baker, DO, Southwest Oncology Group and SARC
Jean-Yves Blay, MD, PhD, Université Claude Bernard in Lyon, France
Murray Brennan, MD, Memorial Sloan-Kettering Cancer Center
Mark Gebhardt, MD, Harvard University, Beth Israel Deaconess Medical Center
Richard Gorlick, MD, The Children's Hospital at Montefiore
Mary Louise Keohan, MD, Memorial Sloan-Kettering Cancer Center
Crystal Mackall, MD, National Cancer Institute
Ole Steen Nielsen, MD, University of Aarhus in Aarhus, Denmark
Raphael Pollock, MD, PhD, University of Texas M. D. Anderson Cancer Center
R. Lor Randall, MD, University of Utah, Huntsman Cancer Institute
Luca Sangiorgi, MD, PhD, Rizzoli Orthopaedic Institute (IOR), Italy
Leonard Wexler, MD, Memorial Sloan-Kettering Cancer Center

Sarcoma Advocacy Advisory Committee

Elizabeth Goldstein-Rice
MiMi Olsson
Christian "Bob" Pfeiffer
Mary Sorens

Editor-in-Chief

Bruce Shriver, PhD

Associate Editor

Mary Sorens

Editorial Staff

Clinical Trials: Mary Sorens
Odds and Ends: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Stories of Courage and Hope: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Research Corner: Bruce Shriver, PhD and Tom Swartz

Contributing Editors

Coordinating Editor, CTOS Op Ed: G. Douglas Letson, MD, Moffitt Cancer Center

Copy Editors

Beverly Shriver, RN
Tom Swartz