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Inspiring Reflections

The Bike

It sat in the garage, unused for years. This shiny, silver, blue and black bike, still with training wheels attached, beckoned a rider. We gave this bike to our then four-year-bikeold son, before he became ill, very ill.

On a beautiful, warm April Sunday afternoon, a miracle happened.... Read more.

One out of Ten

I was first diagnosed with Leiomyosarcoma (fondly known as LMS) on my 54th birthday, the 4th of July, 1997, when a tumor the size of a baseball ruptured from my small intestine, more than seven years ago as I write this. The only studies we could find back then predicted that 9 out of 10 did not survive 5 years. Immediately I decided that if one out of the 10 lived, I would be that one. Whatever it took, I would hang on until they discovered something that could help me. - Louiseflower

When I was diagnosed...

I wish I had known not be scared about the "what ifs" and to focus on what I can do today to make my life and my family's life a positive experience. I had to learn to walk unassisted through rehab, and I had to commit to training my brain and body to work differently. I now can golf and swim, and I'm back to work. I didn't think I would be able to do any of this at the time of my diagnosis, and I don't think my doctors did either. Although at times I wish I had not had to go through this, it's a journey that has made me and my family stronger." - Ruth from our Facebook group

Sisters

I am the only big sister of one - Kathy. I have always wished that I was the teacher that I thought all my big sisters have been to me. Beautiful - A drawing by Rachel LozanoThen I got cancer. Kathy came to visit me in the hospital during one of my first treatments.My hair was really falling out and I guess I did not say anything to her - it is truly one of the most unspoken humiliating side effects of the whole process. She was trying so hard to be my big sister, she offered to massage my head, to comfort me and I let her. And then I heard the gasp. A large clump of my hair came out in her hand and she was so shocked and I was so ashamed because I AM THE BIG SISTER and I could not offer her any protection from me. Kathy hid behind me and cried a little and then recovered herself valiantly. I guess these big sister things are really lines drawn in the sand. - Debbie

AlanAlan's Peace

What I remember about my reaction to the discovery of LMS was my sense of peace regarding where I was in life. As my children were both adults with families and well-established in their careers, and my wife was strong and active, I felt that I could move forward in good spirits no matter how many days, months, or years lay ahead for me. - Alan

Side Room 2

A very neat affair
My room, with elegant taps
An imperative washing of hands
With every visitor.
The clinical waste does mount up
But is well maintained.
I declare this room has all good features
Confinement can possibly have.
- Lynda, diagnosed at 49

Hope for the Journey

Flowers in the sun

"I think not knowing what to expect is good because it makes you just deal with what happens one day at a time. If a friend of mine was diagnosed with a sarcoma, I would tell them I am here for them and that they will get through it just like I did."

- Aleksei, 14 years old

Hope

hope remains undeterred.
she pulls on her jeans, ties her boots
and walks out the door for another test.
she glows below the autumn trees
feet hitting pavement as they’ve always done.
hope is my best friend,
sometimes i’m unsure if she’s beside me
or within me
if these boots are mine or hers.
- Mary

Caring in Hard Times

Being a caregiver is not a thankless job, although as the weeks and months wear on it certainly feels that way. No one applauds us when we fill a prescription, give a glass of water, adjust a pillow, bandage a wound or schedule a doctor’s appointment. Our reward comes from knowing that someone we love feels better, safer and healthier because of what we do. I have to believe that’s a good enough reason to get up tomorrow and do it again. - Jane

Scans

Shadows and spots
mark my fate
on a film, just a film
between life and death.
I can see through it;
I can see the light behind it.
- Suzie

flowerOlly's Journey

Olly didn't want his cancer to run our lives. We were all devastated by the situation and found it incredibly difficult to get on with things in our lives. But every time we spoke to Olly on the phone, he would ask us what we'd been doing. We always knew he'd ask, and knew we had to have something to tell him or he'd know we'd been miserable about him. I'm sure this was his way of keeping us going and not letting the cancer completely take over. - Emily

Hope is...enduring chemo, so you can live to see your one year old daughter grow up.

- Rene from our Facebook Group

Hopeful Sarcoma Stories

The following people have graciously shared their stories with us. Excerpts of their stories are featured on the sarcoma subtype pages. Diana's story and Wendy's story have just been added!

Aidan

Aidan, South Africa

rhabdomyosarcoma

Alan

Alan, California

leiomyosarcoma

Aleksei

Aleksei, Canada

Ewing's sarcoma

Bryall

Bryall, New Zealand

osteosarcoma

Cari

Cari, California

osteosarcoma

Carly

Carly, Massachusetts

mesenchymal
chondrosarcoma

Charisse

Charisse

DFSP

Christina

Christina, Pennsylvania

synovial sarcoma

Dale

Dale

epithelioid hemangioendothelioma

David

David

osteosarcoma

Deborah

Deborah, Illinois

periosteal osteosarcoma

Diana

Diana, Illinois

MFH

Hilary

Hilary, Virginia

synovial sarcoma

Jeanna

Jeanna

chondrosarcoma

Jessica

Jessica

Synovial Sarcoma

Justin

Justin, Nevada

osteosarcoma

Kate

Kate, United Kingdom

DSRCT

Kelly

Kelly, Michigan

osteosarcoma

Logan

Kenji, California

Ewing's sarcoma

Kyle

Kyle, Louisiana

DSRCT

Lavon

Lavon, Texas

liposarcoma

Logan

Logan, Michigan

osteosarcoma

Lori

Lori, Texas

MFH

Mary

Mary, New Hampshire

parosteal osteosarcoma

Mel

Mel, Maine

osteosarcoma

Olga

Olga, Russia

Ewing's sarcoma

Pierre

Pierre, Belgium

Ewing's sarcoma

Rachel

Rachel, Illinois

Askin's tumor

Sandra

Sandra, Louisiana

solitary fibrous tumor

Sara

Sara, Colorado

chondrosarcoma

Sigridur

Sigridur, Iceland

DFSP

Tammi

Tammi, United Kingdom

DFSP

Teresa

Teresa, Canada

liposarcoma

Tom

Tom

chondrosarcoma

Tracy

Tracy, Canada

chondrosarcoma

Truman

Truman

osteosarcoma

Wendy

Wendy, Florida

osteosarcoma