Feature Articles

770 People? Wait 'till Next Year

This editorial has been replaced with a link to information about Team Sarcoma 2006 at the Team Sarcoma website.

Lobbying for the "Exceptionally Rare Diseases and Conditions Act"

Dr. Mark Thornton discusses a bill, that if brought before Congress and passed, would provide a unique pathway for new drugs for sarcoma patients.

Prognosis in GIST

Julia D. Royster, Ph.D. tells us there is a growing body of evidence that specific mutation status can contribute prognostic information in GIST.

Poems Along the Way

Rachel Baumgartner shares with us some poems she wrote en route to becoming a survivor of Askin's tumor.

Tylar and Andy

Kelly Wilson tells why her daughter Tylar's dog Andy is a person, not a dog!

Regular Columns

Stories of Courage and Hope

Abstracts of inspiring stories we have recently encountered about sarcoma patients, survivors, caregivers and those who have lost a loved one to sarcoma.

The Electronic Sarcoma Update Newsletter is an online peer-reviewed newsletter that contains articles of interest to patients, caregivers, physicians, and nurses. ESUN is published bi-monthly and has regular columns discussing:

Specific sarcomas
Current issues in sarcoma treatment
Participatory medicine
Recent research findings
Answers to readers' questions
Stories of courage and hope

ESUN has an outstanding Medical Editorial Board and is a vital source of information for thousands of readers worldwide.

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Information for Authors

We welcome contributions of essays and articles that are relevant to ESUN and its intended audience.
If you would like to write an article for ESUN, please contact us and we will send you our Guidelines for Authors.

Contact Information

ESUN
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Ossining, New York 10562-1620
Phone: (914) 762-3251
Fax: (914) 941-9181
E-mail: esun@sarcomahelp.org

Disclaimer

Information on the The Initiative's website and in the Electronic Sarcoma Update Newsletter (ESUN) is provided on an "as is" basis for general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs. We caution readers and internet users to take care when using "medical advice" obtained on the web or in newsletters such as this. If you are concerned about your medical condition or that of a family member, loved one, or friend, we strongly recommend that you consult a physician. Although we carefully review our content, The Initiative cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of the various websites that we link to or that are linked to The Initiative's website. We believe the information on our website and in ESUN provides you with a starting point for a discussion with your physician who can give you his/her opinion about it.

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Articles from the Electronic Sarcoma Update Newsletter are peer-reviewed, professional content that is fully copyrighted. You cannot publish or redistribute these articles for commercial purposes without written permission from us. You can publish or redistribute these articles for non-commercial purposes without written permission, as long as the content is attributed to the Liddy Shriver Sarcoma Initiative. For more information, see the complete Terms of Use of this website.

Medical Editorial and Advisory Board

Laurence Baker, DO, Southwest Oncology Group and SARC
Jean-Yves Blay, MD, PhD, Université Claude Bernard in Lyon, France
Murray Brennan, MD, Memorial Sloan-Kettering Cancer Center
Frederick (Fritz) Eilber, MD, UCLA Medical Center
Mark Gebhardt, MD, Harvard University, Beth Israel Deaconess Medical Center
Richard Gorlick, MD, The Children's Hospital at Montefiore
Alessandro Gronchi, MD, Istituto Nazionale Tumori in Milan, Italy
Mary Louise Keohan, MD, Memorial Sloan-Kettering Cancer Center
Crystal Mackall, MD, National Cancer Institute
David Malkin, MD, The Hospital for Sick Children in Toronto, Canada
Ole Steen Nielsen, MD, University of Aarhus in Aarhus, Denmark
Raphael Pollock, MD, PhD, University of Texas M. D. Anderson Cancer Center
R. Lor Randall, MD, University of Utah, Huntsman Cancer Institute
Piotr Rutkowski, MD, PhD, Sklodowska-Curie Memorial Cancer Center in Warsaw, Poland
Peter Schlag, MD, PhD, Charité University Hospital in Berlin, Germany
David Thomas, MD, Peter MacCallum Cancer Centre in East Melbourne, Australia
Margaret von Mehren, MD, Fox Chase Cancer Center
Leonard Wexler, MD, Memorial Sloan-Kettering Cancer Center
Jeremy Whelan, MD, University College Hospital in London, United Kingdom