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ELECTRONIC SARCOMA UPDATE NEWSLETTER
DECEMBER 2004

Volume 1, Number 6

Feature Articles

Our First Year Comes to a Close

Editorial by Bruce Shriver

Mesenchymal Chondrosarcoma

Dr. John Goldberg and Dr. Holcombe Grier give an informative introduction to one of the rarest sarcomas, mesenchymal chondrosarcoma.

Adolescent and Young Adult Cancer Care

Dr. Karen Albritton discusses the special needs of adolescents and young adults with cancer.

Guidelines for Patients and Caregivers

Dr. Murray Brennan shares some of his insights to help patients and caregivers.

Living Well In Spite of Sarcoma

Louise Ladd, a survivor of GIST, shares her insights (with help from Carol Berres) on keeping joy in your life.

ACOR: A Quest

Truus van der Spek, a native of The Netherlands, describes her worldwide travels to meet people who supported her and her son during his journey with sarcoma.

Tissue Drive Status

Iqbal Ahmed gives abrief update on Dr. van de Rijn's leiomyosarcoma study at Stanford which was discussed in the last issue of ESUN.

Regular Columns

Q & A

Dr. Mary Louise Keohan addresses the question, "What is chemo brain?"

Copyright © 2004 Liddy Shriver Sarcoma Initiative.


The Electronic Sarcoma Update Newsletter is an online peer-reviewed newsletter that contains articles of interest to patients, caregivers, physicians, and nurses. ESUN is published bi-monthly and has regular columns discussing:

  • Specific sarcomas
  • Current issues in sarcoma treatment
  • Participatory medicine
  • Recent research findings
  • Answers to readers' questions
  • Stories of courage and hope

ESUN has an outstanding Medical Editorial Board and is a vital source of information for thousands of readers worldwide.

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Information on the The Initiative's website and in the Electronic Sarcoma Update Newsletter (ESUN) is provided on an "as is" basis for general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs. We caution readers and internet users to take care when using "medical advice" obtained on the web or in newsletters such as this. If you are concerned about your medical condition or that of a family member, loved one, or friend, we strongly recommend that you consult a physician. Although we carefully review our content, The Initiative cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of the various websites that we link to or that are linked to The Initiative's website. We believe the information on our website and in ESUN provides you with a starting point for a discussion with your physician who can give you his/her opinion about it.

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Articles from the Electronic Sarcoma Update Newsletter are peer-reviewed, professional content that is fully copyrighted. You cannot publish or redistribute these articles for commercial purposes without written permission from us. You can publish or redistribute these articles for non-commercial purposes without written permission, as long as the content is attributed to the Liddy Shriver Sarcoma Initiative. For more information, see the complete Terms of Use of this website.

Medical Editorial and Advisory Board

Karen Albritton, MD, Dana-Farber Cancer Institute
Laurence Baker, DO, Southwest Oncology Group and SARC
Jean-Yves Blay, MD, PhD, Université Claude Bernard in Lyon, France
Murray Brennan, MD, Memorial Sloan-Kettering Cancer Center
Mark Gebhardt, MD, Harvard University, Beth Israel Deaconess Medical Center
Richard Gorlick, MD, The Children's Hospital at Montefiore
Mary Louise Keohan, MD, Memorial Sloan-Kettering Cancer Center
Crystal Mackall, MD, National Cancer Institute
Ole Steen Nielsen, MD, University of Aarhus in Aarhus, Denmark
Raphael Pollock, MD, PhD, University of Texas M. D. Anderson Cancer Center
R. Lor Randall, MD, University of Utah, Huntsman Cancer Institute
Luca Sangiorgi, MD, PhD, Rizzoli Orthopaedic Institute (IOR), Italy
Leonard Wexler, MD, Memorial Sloan-Kettering Cancer Center

Sarcoma Advocacy Advisory Committee

Elizabeth Goldstein-Rice
MiMi Olsson
Christian "Bob" Pfeiffer
Mary Sorens

Editor-in-Chief

Bruce Shriver, PhD

Associate Editor

Mary Sorens

Editorial Staff

Clinical Trials: Mary Sorens
Odds and Ends: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Stories of Courage and Hope: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Research Corner: Bruce Shriver, PhD and Tom Swartz

Contributing Editors

Coordinating Editor, CTOS Op Ed: G. Douglas Letson, MD, Moffitt Cancer Center

Copy Editors

Beverly Shriver, RN
Tom Swartz